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Hospice had her on Bactrim about a month ago, then after a few weeks had her do another course of it. She is not better, delerium, discomfort,not sleeping even with Olanzipine, lorazepam, myrtazapine, melatonin.sleeps a lot in day but is often up for hours at night talking and feeling upsetshe is eating a little better now.

Breezy1, you posted about this a bit in your other question mentioning about the Hospice that you have had problems with. You have since changed Hospice providers. Is this Hospice more willing to prescribe another medication?
Typically there are meds that are "formulary" that can be prescribed without approval.
If necessary there is always the option to pay for a non covered medication out of pocket.
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Reply to Grandma1954
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Breezy1 4 hours ago
Thanks, you always have good ideas and realistic suggestions. The new hospice is good and responsive. Just getting started but they have made a difference already.
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They should do a culture to find out what bacteria is causing the problem. It maybe, if Mom has been on antibiotics for a while, that she is now resistant to antibiotics.
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Breezy1 4 hours ago
I did ask about a culture but they are not sure if her symptoms are infection or progression. Today they updated her meds to be more streamlined and targeted so hopefully that will help. Thanks
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Did they culture her urine to see if they need a specific antibiotic or are they just poking around in the dark?

Also, it's apparent that the melatonin isn't working so I would stop giving it to her. Giving someone too much or at the wrong time can cause more problems than it solves. The delirium (and dementia if she has any) is messing up her normal sleep so not sure a supplement will fix it especially with all the other meds she's on.

I'm so sorry you're both gong through this!
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Breezy1 4 hours ago
I agree about the melatonin. And new nurses are eliminating meds that she doesn’t need so hopefully they find a protocol that works to eliminate the agitation. It’s all pretty overwhelming! I am learning better ways to manage things like changing in bed etc. Thanks
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Maybe they could try a different antibiotic?
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Breezy1 4 hours ago
That was my original hope. Not sure what the plan is next so we’ll see.
I feel like they are addressing our concerns with care and intention. That is comforting. Thanks for the reply, the support from this forum is comforting too. Thanks
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is she still on hospice?
Is she getting enough fluids?
When does the nurse practitioner or doctor come to check on her...
Have a heart to heart talk with dr.
Play mom's favorite music, tell stories, make sure dr gives her something to make her comfortable.
Maybe her body just can't fight this UTI as easily as before..
Maybe your hospice has a musician who can play a few songs for your mom.
If mom has a strong faith, you can ask hospice to bring in someone of her faith to talk with her and you.
Flowers.. lighten up her atmosphere with flowers. If she's not on oxygen, light up a couple of candles.
Try to get more fluids down her. Does she like Jello..
my mom graduated out of hospice 3 times.. the 3rd time she went to heaven..
I'm sorry you're going through this..
Hopefully she get through this.
🙏
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Reply to MAYDAY
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Breezy1 4 hours ago
Love all the ideas! She started the new hospice this past Tuesday. They are doing a good job, finally feel like we are getting care tailored to her.
and I appreciate the mention on drinking enough.. I do want to be sure she is hydrated. Thanks
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