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My grandpa is 83 and has Dementia. I would say that he is declining a lot these days. Lately I have to get him up from sitting on his chair and have him walk to the bathroom and try to use it and if he can’t then I have to change his “pull up” his depends type underwear. Lately he has been going pee in this a lot more these days. He hardly uses the toilet to pee, unless he is right there and needs to pee. Which isn’t the case most times. He tells me that I am going to kill him and not to drag it out just kill him already, so he doesn’t have to guess when it will happen. I try to calm him down and tell him I’d never do that and that we just gotta change his wet pull up and clean up and put his dry one on. He has been putting all his weight on the leg that I am trying to have him lift up so I can take his underwear off. It’s been so hard lately cause he will fight me all the way. From the walker to the bathroom, to the taking his underwear off. Does anyone have any advice on making it easier on me? Cause it’s been so rough these days and it’s only seeming to get harder. I know I have it a lot easier then most, especially because I don’t have to change his diapers yet. But I’m can feel it’s almost there. Any advice would be nice. Thank you and god bless you all!

OP, I just came across this, and the answer to your question is YES Many many of us have 'problems with their relative going to the bathroom". In CAPITAL LETTERS!
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Reply to MargaretMcKen
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Have you tried underware with tabs instead of pull ups
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Reply to MACinCT
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I'm 80 yrs old, and I know whenever I need to hand wash some dishes, I find right after I turn on the water I need to make a made dash to the bathroom. Maybe try turning on the faucet when your grandfather is in the bathroom (hopefully he can hear the water running) and see if that helps.
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Reply to freqflyer
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Okay, my two cents: You are a kind and caring grandchild. But. The narrative that you or someone came up with to justify losing your life and your own personal choices and everything that you should be experiencing at this time of your life - it's keeping you prisoner.

When grandpa did all those kind things for you, he was in a time of his life when his health was good and he enjoyed and benefitted mentally and emotionally from helping his beloved grandchild. (I'm a grandparent, and that's the way it is.) My grandchildren are important to me and I love them dearly. That is why I don't expect them to feel indebted to me for what I've done for them when it was a pleasure for me. I would never ever expect from them what your family and grandpa expect from you. True parental and grandparental love are selfLESS, not selfish.

What if grandpa lives another 10 or 15 years? Trust me, you will go bananas if you stick to your altruistic vow of helping as long as you can as long as you are able. That is not a a good idea. You and your life are important. He's mostly lived his.

Do you have a job? If not, you are cheating yourself because you've not building social security credits. SS is what will take care of you in your old age. You might not be so lucky to have a grandchild like you who will sacrifice their life to change your diapers. Do you have a significant other? You should be thinking about that. Your youth is slipping away. Do you have an education that will help you in your career? Or have you put that on hold? DON'T DO THAT.

As for the toileting of grandpa, this is going to get much worse. You aren't a professional caregiver, but he will soon need more than one person to care for him, and he deserves better than someone who's learning on the job (you). Please talk to your family and tell his children that you need out. This is more responsibility than you should be carrying. Also, based on his conversations with you, sweet kind grandpa may become combative. That's normal with dementia. He may strike out, he may yell and scream bad words or make accusations that aren't true. Protect yourself. Once he starts abusing you, stay away from him. Dementia or not, never allow anyone to abuse you. Dump the problem back in your mom's lap and let her deal with it. A memory care home might be the best place for grandpa to get the best care, and you should tell her that.

Good luck, and please let us know how you're doing.
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Reply to Fawnby
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PeggySue2020 Sep 25, 2026
Thanks for the astute post, Fawnby.

The Covid scare was mostly over by 2021-2022. It’s been five years now, five years of youth that you, op, will never get back.

And as for assuming grandpa will take care of you? That’s what fil did when he refused to pay for his own kids’ college. He thought his mother would. The kids went into construction as dad kept promising it’d be easy street for them once his mom died. She took until 103 to do it. A few years later, fil and mil commenced on getting 24/7 help for their then very acute conditions with grandmas inheritance. Fil died of his, but mil is in remission, basically healthy, with care basically at an elective 16 out of 24 hours a day for the rest of her life whether healthy or not. She’s only 81. As far as what that grandma left, the grandkids never will see it. Their parents took care of that.

Same thing with your mom and aunts/uncles unless you’re informed otherwise in writing, Your mom and her siblings need to put on their big girl pants and handle this themselves or put him in a home instead of forcing it on you. Especially since you likely won’t benefit like them.

Op, I’d give a months notice, perhaps two, or whenever you get your first offer from care.com to do half the work you do now for enough money to afford your own room and your own independence. There seriously are agencies charging 70+/hr just to provide employees that drive miss Daisy around, no diaper handling required.
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Get him up every 2 hours to go to the bathroom. Does not matter if he has to go or not just get him there.
To take off the pull up brief just rip it at the side.
When you get him into the bathroom rip the brief and have him sit down.
After he is done you can more easily and safely put on the clean pull up brief.
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Reply to Grandma1954
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Tell him that you are not going to kill him, but if he continues to get more difficult he will put himself into a nursing home. It's his choice.
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Reply to MargaretMcKen
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Dementiahelp1 Sep 25, 2026
I have told this to him before. But he doesn’t like to talk to me about anything when I’m helping him. He is just on repeat, ur gonna kill me and he even yells help me! He’s gonna kill me! I tell him please stop, there isn’t anyone there. It’s only you and I and that’s all. It’s getting hard having to do this 4 -5 times a day, everyday.
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If your grandfather doesn't know when its going to happen, he is now incontinent. He can't hold it anymore. Ts suggested that you take a person to the bathroom ever two hours.

Not sure if this is the problem your having and I found this out when Mom went to Assisted Living. Diapers tear down the sides making it easier to get off. If your Dad has slacks on what you do is drop them till they are around his ankles. You slip one leg of the diaper over his ankle slipping the other side of the diaper thru the inside of his pants over to the other ankle and slip on. Then you can pick up the diaper and his pants too and bring them up. I hope I dicribed that right. There is probably a YouTube video on it.
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Dementiahelp1 Sep 25, 2026
Hi, yes I tell him we’re gonna be going to the bathroom every 2 and a half hours. So expect that to happen every single day. He just rolls his eyes and tells me shit, and looks the other way. He is a mean one. I’ve only known him to become as grumpy as he is, the other older men I’ve known have gotten super nice and always have been all smiles. I tell him he’s such a grump! Lol! But this does sound helpful, thank you. Yeah we had been putting his depends underwear on and in top of that, then his regular tidey whites, but now I see that’s not beneficial for him anymore and me as well. A diaper sounds a whole lot better then having to have a super match 4-5 times a day lol. I’ll try this tonight. I appreciate this….
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Why are you caring for grandpa? Where are your parents and their siblings?
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Reply to PeggySue2020
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Dementiahelp1 Sep 25, 2026
I moved in with him after he got Covid to help him get better with this and the dementia actually came in faster then I think it would have because of the Covid. So when he got worse I just stayed and that’s how it ended up. My mom does switch with me every 4-5 days and comes by and stays with him for 3 nights. Then I go back, which has been heaven sent. Cause before that it was me, 24/7 for like a year or two! My Uncle comes and makes dinner for him maybe 4 times a week, but I am not sure why he doesn’t come more to stay with him? And as for his other daughter my auntie, she lives outta state. My mom just started to switch with me for a good 6 months so that’s been so helpful. I can’t tell you how hard this has been on me and my life. Actually I don’t feel I have a personal life but I feel that my grandpa has done so much for me in my life when he was well, that I owe him this and I want to Help as much as I can for as long as I am able to.
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